HAEi awarded 2 members from Panama a grant to attend the HAE Global Conference in Germany, but due to the pandemic it could not be held. Thanks to HAEi, the leaders of Central America and the Caribbean have met, we have had some meetings via zoom, which gave us the opportunity to exchange ideas and gave us support. What support/ resources have you used from HAEi? What has HAEi helped you to achieve? Olga Barrera, on behalf of the patients association, had the opportunity to give a talk about Hereditary Angioedema with the senior class at the University of Medicine of Panama. 3 patients participated in the programme, sharing their experiences with HAE. Olga Barrera was the expert on the subject. We had the opportunity to participate in the program “Medicina Al Dìa” who made a complete report on Hereditary Angioedema.We have also had some publications about the disease in various newspapers.A psychologist also participates in these meetings and provides support to the association’s patients. We have had other face-to-face patient meetings, and during the pandemic situation we meet via zoom.The most important event has been the first meeting of patients with Hereditary Angioedema in Panama.In 2017, the first panel of Experts on Hereditary Angioedema for Central America and the Caribbean was held in Panama, this event had the participation of experts in HAE.What is the resource, event or activity that you are most proud of organizing for people with HAE in your country, from 2012 to now? For us, as an association, the greatest achievement will be to have accessibility to medicines, we have not achieved it yet but we have a lot of FAITH that we will achieve it soon.In Panama we also have a law that guarantees social protection to the population suffering from rare, infrequent and orphan diseases, Law No.One of the greatest achievements for Panama has been to be the first country in Central America to have an association of patients with a registered legal status.What is the biggest achievement for people with HAE, in your country, from 2012 to now? Knowing well the mechanism of action of the disease has also been very helpful for us, because that way we will know how to act during an attack.The positive changes that have occurred for the people with HAE in Panama have been to get to know each other, to come together as a group and form a single force and create an association of patients with Dr. Mysteries and clues await everywhere in Year Walk, but to fully understand the events that took place on that cold New Year's Eve, you will have to delve deeper than the adventure and lose yourself between fact and fiction.What positive changes have happened for people with HAE, in your country, from 2012 to now? Solve and decipher cryptic puzzles, listen for clues, and learn about mysterious folklore creatures in the built-in encyclopedia as you seek to foresee your future and find out if your loved one will ever love you back. Venture out into the dark woods where strange creatures roam, on a vision quest set in 19th century Sweden. About This Game In the old days man tried to catch a glimpse of the future in the strangest of ways.Įxperience the ancient Swedish phenomena of year walking through a different kind of first person adventure that blurs the line between two and three dimensions, as well as reality and the supernatural.
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